• Brenda Cleary
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Piecing it All Together : Poetry from the Osteogenesis Imperfecta ...

By: Ms. Dr. Argerie Tsimicalis, Editor; Yi Wen Wang, Illustrator

This book of poems was created from research transcripts. There are three parts of the book. Part One focuses on the environmental influences acting on children. Part Two explores how children would like to act out their preferences and values. Part Three seeks to “Piece it All Together”. Care, dedication and innovation will continue to make Shriners Hospitals for Children an even more happier, safe and child-friendly place.

The hardship was not a medical problem It's physical and social barriers, The hardship was not a medical problem It's physical and social barriers, .......The teachers were not nice ........ bullies ........The doctors were a little bit mean He would wish that he would not feel so much pain when others made fun of him. Stigmatization That was the hardship. I did not live with the sense of being different children in my school were sensitized they started sa...

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The Skool of No Fun and No Play : Adventures in Osteogenesis Imper...

By: Dr. Ms. Brenda Cleary; Argerie Tsimicalis, Editor

This children’s story was collaboratively written with patients affected by osteogenesis imperfecta (OI), a bone disease known for causing deformity and elevated fracture risk, at the Shriners Hospitals for Children® – Canada. Children were invited to invent a story wherein a “bad” school transforms into a “good” school, thereby revealing the complex values and preferences these children hold. We believe that by understanding the perspectives of children our communities can better serve them.

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